{"id":4319,"date":"2017-12-06T13:32:54","date_gmt":"2017-12-06T18:32:54","guid":{"rendered":"http:\/\/ezermizion.org\/blog\/?p=4319"},"modified":"2017-12-12T13:53:31","modified_gmt":"2017-12-12T18:53:31","slug":"45-years-of-tears-the-bone-marrow-transplant-that-never-took-place","status":"publish","type":"post","link":"https:\/\/ezermizion.org\/blog\/45-years-of-tears-the-bone-marrow-transplant-that-never-took-place\/","title":{"rendered":"45 Years of Tears: The Bone Marrow Transplant that Never Was"},"content":{"rendered":"<figure id=\"attachment_2515\" aria-describedby=\"caption-attachment-2515\" style=\"width: 150px\" class=\"wp-caption alignleft\"><a href=\"http:\/\/ezermizion.org\/blog\/wp-content\/uploads\/2014\/07\/pr-phone.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-2515 size-full\" src=\"http:\/\/ezermizion.org\/blog\/wp-content\/uploads\/2014\/07\/pr-phone.jpg\" alt=\"pr phone\" width=\"150\" height=\"150\" \/><\/a><figcaption id=\"caption-attachment-2515\" class=\"wp-caption-text\">&#8220;Where were you 45 years ago when my son needed a bone marrow transplant?&#8221;<\/figcaption><\/figure>\n<p>At Ezer Mizion\u2019s busy office, the phone does not stop ringing. At times, it is the ubiquitous telemarketing call. Other calls may be requesting information about the <strong>bone marrow registry<\/strong>. Some calls can be as brief as several sentences but leave the staff member stunned. Like this one received by Chani :<\/p>\n<p>\u201cWhere were you 45 years ago? When my son needed a <strong>bone marrow transplant<\/strong>? I took my two daughters to be tested at UCLA but they were not a <strong>genetic match<\/strong>.\u201d Then her voice faltered, \u201cBefore we could try more people, my son&#8212; my son&#8212;- my son died.\u201d Her voice broke but she tried to continue speaking, \u201cI want to give you a donation. Your organization is so important. \u00a0I only wish it had been in existence 45 years ago. Perhaps he could have received a <strong>bone marrow transplant<\/strong>. Perhaps he could have been saved.\u201d She was overcome by tears and hung up the phone.\u00a0\u00a0 The pain of losing a child does not disappear, even after 45 yrs.<!--more--><\/p>\n<p>That\u2019s why Ezer Mizion\u2019s<strong> Bone Marrow Registry<\/strong> was founded. For people like this lady\u2019s son. People with Jewish ethnicity\u00a0who need a\u00a0DNA match\u00a0to save their lives. Ezer Mizion&#8217;s <strong>Bone Marrow Registry<\/strong> receives calls from oncology clinics around the world\u00a0 and has saved over 2600 lives with genetically matching donors from its 850,000 registrants.<\/p>\n<p>Matan was only ten years old when he was diagnosed with leukemia. A diagnosis of MDS soon followed. By age twelve, his <strong>bone marrow<\/strong> was deteriorating and it was soon obvious that without a<strong> transplant<\/strong>, he would not turn 13. Would a <strong>DNA match<\/strong> be found? In time?<\/p>\n<p>Matan was one of the fortunate ones.\u00a0\u00a0 Yifat was a newly married young girl.\u00a0 Years ago, she had registered with Ezer Mizion&#8217;s <strong>Bone Marrow Registry<\/strong>, never expecting to actually be called. But the call did come.\u00a0 It was she who could save the life of Matan, a young boy who would later mature and marry, producing his own children. \u201cI went insane with joy,\u201d she describes the day she received the call. \u201cOf course I said yes.\u201d<\/p>\n<p>Yifat, now expecting her first child, met Matan for the first time recently. \u201cI\u2019m feeling great!\u201d Matan fairly shouted when Matan asked him. \u201cOf course, I plan to go to your simcha when the baby is born. We\u2019re sister and brother now. Your blood is in me.\u201d<\/p>\n<p>It is no longer 45 years ago when patient after patient died while waiting for a DNA match to be found. \u00a0Matan had a lovely Bar Mitzvah celebration. It was tears of joy that were shed by his parents as they thought to themselves, \u201cWhat if there had been no <a href=\"http:\/\/www.ezermizion.org\/pdfs\/Ezer_Mizion_Review_2017.pdf\" target=\"_blank\">Ezer Mizion<\/a>?\u201d<\/p>\n<p><strong><a href=\"https:\/\/ezermizion.org\/donate-to-ezer-mizion.html#tabs-2\">Your contribution will help us process more life saving DNA tests. Please give generously.<\/a><a href=\"https:\/\/ezermizion.org\/donate-to-ezer-mizion.html\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-4332 size-medium\" src=\"http:\/\/ezermizion.org\/blog\/wp-content\/uploads\/2017\/12\/DONATE-TODAY-BUTTON-3-300x88.png\" alt=\"DONATE-TODAY-BUTTON-3\" width=\"300\" height=\"88\" \/><\/a><\/strong><\/p>\n<a class=\"synved-social-button synved-social-button-share synved-social-size-24 synved-social-resolution-single synved-social-provider-facebook nolightbox\" data-provider=\"facebook\" target=\"_blank\" rel=\"nofollow\" title=\"Share on Facebook\" 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At times, it is the ubiquitous telemarketing call. Other [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[95],"tags":[10,741,756,763,762,11],"class_list":["post-4319","post","type-post","status-publish","format-standard","hentry","category-bone-marrow-registry","tag-bone-marrow","tag-bone-marrow-registry","tag-bone-marrow-transplant","tag-dna-match","tag-genetic-match","tag-transplant"],"_links":{"self":[{"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/posts\/4319","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/comments?post=4319"}],"version-history":[{"count":14,"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/posts\/4319\/revisions"}],"predecessor-version":[{"id":4339,"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/posts\/4319\/revisions\/4339"}],"wp:attachment":[{"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/media?parent=4319"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/categories?post=4319"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ezermizion.org\/blog\/wp-json\/wp\/v2\/tags?post=4319"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}