It was my birthday and I knew just what I wanted. When I was a little kid, I had some birthday requests that were so out of line that even i understood they were just dreams. Like the time I wanted a horse (We were living in an apartment building.) Now as an adult about to turn 40, my birthday dream seemed just as unattainable. What was it? : A gift of giving, It’s what Ezer Mizion calls a Personalized Donor Pool – a group of potential bone marrow registrants who stand ready to save the lives of cancer patients. My own group whose genetic testing I would be responsible for. Whenever one of them would be found to be a match for a cancer patient and donate his stem cells, I would receive a call with the electrifying words: You have saved a life. What a gift! Every month, I would read the list of names of those whose pools had saved one, sometimes two, lives and I’d think, “Why not me?!”
And so I began working on my birthday gift. I drove everyone crazy. There were hundreds of messages on my facebook page focusing only on this. My whole family was caught up. Even my kids were involved answering phones all night. It was a matter of raising a large sum of money and some of my friends teased me with comments like, ‘Dream on…’ but some of my friends responded more encouragingly and joined in to help me. And as the numbers climbed up, more and more changed their minds and decided to join what seemed to be a winning team. The final numbers (for this year- remember,I have another birthday coming up next year…):
728 people who donated a total of $40,000+ that sponsored 716 new registry members!
Recently our donor pool was launched. My husband and I came for a tour of Ezer Mizion’s cancer support facility in Petah Tikvah. We got home an hour ago and the tears don’t stop flowing. If I only could show all of you what this place looks like! It’s an entire world of chessed, What they do for the patients! To walk into the Registry and see a soldier who was found to be a match for a patient sitting there, waiting to donate, to give life to another human being. Many of them. All spending hours of their time just so someone they never met could have a future.
The strength of a few words, softly whispered, carefully transported on the beams of a gentle smile. They bring a surge of vigor — vigor with the power of a tsunami! That was Mayan. Only nine years old but with the ability to imbue others with her profound strength. Mayan had been stricken with leukemia. While her friends were learning to jump rope, she was spending weeks at a time in a scary hospital witnessing what no child should ever see. Ezer Mizion staff and volunteers supported her and her family emotionally, psychologically and practically with a broad range of programs. All those who met her commented on her strong will to fight this battle and win. Mayan spent a great deal of time at Ezer Mizion’s Oranit, a guest home for cancer patients and their families to live during the duration of treatment. It was a fun, cheery place to be after the morning ordeal of chemo. She could try her hand at a musical instrument, do crafts, climb the monkey bars at the playground or feed a rabbit at the Petting Zoo. Happy and upbeat, on her way to her next activity, she heard a discordant note. Several women were discussing their illness. “I have no strength!” said one. Our nine-year-old giant headed toward the group. In a powerful embrace, she sent sparks of potent vitality to the woman who had spoken. “What do you mean you have no strength? G-d only sends cancer to people who are heroes!”
At his bris (circumcision), they named him Imri. He was blessed that his parents merit bringing him to the chupah (wedding canopy), a simple, often –taken-for-granted blessing. At the time, it seemed simple. Now they are not so sure. In fact, they are not certain that his mother will enjoy the deep satisfaction of bringing her little boy even to first grade. You see, two-year-old Imri was diagnosed at two months with DBA, a rare disease which does not allow him to manufacture blood cells. He has no clotting system or immune system. When his mother brought him to the ER, the nurse immediately snatched him away and rushed him to the trauma unit. His hemoglobin was 2.5, the level of someone who has passed away. In addition, he has recently developed MDS, a rare blood disease for children which often develops into leukemia. The unfathomable has become all too real for this family. Imri Chai may not live past toddlerhood.Continue reading Let’s Keep on Trying