Because of You!

December Bone Marrow Registry Report

2021 Bone Marrow Registry S
ummary

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HE GAVE LIGHT

A stem cell transplant miracle speaks at his Bar Mitzvah

There he was, speaking with enthusiasm, with confidence in front of several hundred people. A newly minted adult Jew in his pristine Bar Mitzvah clothing, chosen with such care for this very special occasion. Flanked by his father and grandfather, he was too involved to notice the tears in their eyes as they remembered. Scenes from his babyhood flashed through their minds and   enhanced the significance of this momentous evening a thousand fold. His father thought of the day he was born when he first heard the shouts, “It’s a boy! It’s a boy!” His joy was boundless. Avichai’s grandfather recalled how he would stop by the house every day on his way to work just to see Avichai. “He’s my pal. He makes my day!” And they recalled the day their world fell apart.  When their precious Avichai was diagnosed with leukemia. The baby’s uncle was Dr. Jerry Stein, the director of the Bone Marrow Unit at Schneiders, a major hospital in Israel. His professional knowledge did not allow for any rosy dreams. He knew that 50% of these patients die. “My heart fell out of my chest when I heard the news!”

Will a stem cell transplant donor be found?

The only hope was Ezer Mizion’s International Bone Marrow Registry, the largest Jewish registry worldwide. A stem cell transplant was needed to save this young life. Genetic matching between donor and recipient is vital for success. A search was performed. The computer raced through hundreds of thousands of names. The staff held their collective breath. The family sat glued to the phone immersed in the timeless words of Tehillim (Psalms). Would the response be the ominous words: No Match Found, a virtual death sentence? Or would there miraculously be a genetic match? From the millions of Jews that inhabit the earth, would there exist a near perfect DNA match? Would he be among those registered in the Registry? A click, a bing. A sound barely heard in the busy office. The computer had stopped at a file. His name was Ziv. His parents had named him Ziv which means light, because he had brought light into their world. And now he was about to do the same for Avichai’s family.

Avichai after his Stem Cell Transplant with Ziv, the Donor

“Would you be willing to donate to save a little boy’s life?” he was asked. The question hardly made any sense to him. “What is the question? Of course, I would donate.”

A year later, the two families met. The little boy, now a healthy, mischievous two-year-old, handed Ziv a present, a Chanukah menorah, a candelabrum of light, and gave his new friend a hug. The atmosphere was electric with unspoken words. Avichai would live!

Avichai Thanks Ezer Mizion for Finding a Stem Cell Donor for him

His family rubbed their eyes. The audience of hundreds were listening intently. Many knew his story. Was this a dream? No, it is real. Avichai has become a man. A Bar Mitzvah bochur (young man). He would grow and mature. He would marry and raise a family who would, in turn, raise their own families… generations…eternity.  

Bar Mitzvah Celebration with Avichai Dancing with Ziv who Made Possible the Life-Saving Stem Cell Transplant
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Because of You!

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Gift from a Bride

A young bride saves a life with a stem cell transplant

Hodaya’s wedding was to be in a few days. Her phone didn’t stop ringing. But this time it wasn’t a mazel tov call or even a call from the makeup lady. “I’m calling from Ezer Mizion Bone Marrow Registry. I have exciting news for you.  (What could be more exciting than my wedding, Hodaya recalled wondering.) A 69 year old lady is in need of a transplant to save her life and you have been found to be a perfect genetic match. Are you willing to donate?”

“Yes! Yes!” she answered trying to make the mental leap from gowns and flowers to IV’s and syringes. “Yes! But can it wait a bit? I really want to do it but you see, I- I-I’m getting married in a few days and…”

“Mazel tov!” said the kindly voice on the phone. “Call me when you’re feeling up to it after the wedding.”

If Hodaya thought her head was awhirl before the call, it was now spinning out of control. What an opportunity! To save a life! She couldn’t wait to share the news with her husband-to-be. And so it was almost immediately after the wedding, during the week of sheva brochos (celebration week), accompanied by her new husband, she began the procedure that was to save the life of Ilana. Within one week, Hodaya began the creation of a new Jewish home and the re-creation of an elderly Jewish woman. 

Yes, the stem cell transplant was a success and a year later, as per international regulations, they met for the very first time. Amid hugs and kisses, the two cried with Ilana pouring forth words of gratitude for the gift she had received from a bride.

Your gift will help save a life!

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Swing for Life

Russell whose life was saved by Ezer Mizion with his wife, Sharon and baby grandson

Ezer Mizion’s annual Golf and Tennis Tournament was held at the pristine Seawane Country Club. Sunshine pervaded the green as the players teed off, elevated by the knowledge that each stroke   was a strike against cancer.

The event entitled Swing for Life serves to benefit Ezer Mizion’s International Bone Marrow Registry. For many cancer patients, a bone marrow transplant is their only chance to survive. Genetic matching between donor and patient is essential for success and, since genetics is based on ethnicity, Jewish donors are needed for Jewish patients. Ezer Mizion is the largest Jewish registry in the world and has saved 3980 lives, 390 in 2020 alone. However, too many requests are not yet met and it is vital that the registry be enlarged. All proceeds of the event will fund the expensive genetic testing of many more potential donors, thus greatly increasing the chances of each request being met with a positive response.

Manny Malekan and Simmie Chiger, Committee Chairs, were thrilled to have the event completely sold out. They were ably assisted the hard-working committee: Dr. Aaron Cynamon, Alex Dembitzer, David Neiss, Dr. David Ritholtz, Dr. Alan Spiegel, Sruli Szpigiel, Jordan Chiger, Zachary Chiger, Jonathon Halpert , Eytan Feldman, Michael Pfeiffer, Dovid Schulman and Jeremy Wulwick.  Each member felt the pride of being part of ‘something big’. The Ezer Mizion ‘Hole in One’ Donor Pool, funded by golf events held both in the US and Israel, has already saved over 90 lives.

Simmie Chiger shared his story with the guests: how he had recently been in a horrific accident and he thanked Hashem with the words: Perhaps the merit of my helping to save the lives of others enabled my own life to be saved.  

The guests were treated to a delectable dinner during which the purpose of the event was further brought home. The attendees met Russell, a young grandfather of three, who thanked Ezer Mizion for enabling him to enjoy watching his grandchildren grow up.  In a moving speech, Russell described his feelings when he received his diagnosis. It occurred so unexpectedly as a result of a routine exam.   The doctor had said he was in good health, like a man 15 years his junior except for a quirky blood test which was probably a mistake. Well, it wasn’t a mistake. Russell soon found himself confronting a monster named Cancer who had entered uninvited into his idyllic life.

For Russell, there was light at the end of his tunnel. Motti, one of the over 1,000,000 Ezer Mizion registrants, was a perfect genetic match. As Russell was about to leave the stage, he was asked if he would like to meet his donor for the first time.  Motti was then brought to the stage where the two embraced as only two brothers can. It was Motti’s blood that now flowed through Russell’s arteries. The two men will forever be intertwined.

Each attendee left the club that evening , knowing that there were many, many ‘Russell’s’ out there- some of them even small children- and he had helped to save Jewish lives.

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No. He Didn’t Do Anything Wrong

pr bmr Lieutenant TLieutenant T. just received his Pilot Wings and yes, he is quite proud. At the young age of 23, he has accomplished even much more. Lieutenant T. has saved a life.  During the course, he was called out by the Division Officer. “Did I do something wrong?” His mind was in a turmoil with all sorts of negative scenarios running through his head until the officer smiled at him saying, “Ezer Mizion would like to speak with you. It seems that you are a possible genetic match for a leukemia patient.”

“What an about face! Suddenly I was a potential hero!”

“It turned out I was a great match for a lady with cancer.  I checked it out with my parents. After all, it was a big step.  They were 100% on board and excited that I had been given this opportunity.  And so the light turned green and it was all systems go. I took off a few days to have the injections that they give you to increase the stem cells in your blood. And then came the big day. Perfectly comfortable with reading material and visitors,  to occupy me as blood was removed via one arm, stem cells separated and blood then returned to me via the other arm. It took several hours but was painless and I felt fine.  It is definitely a great privilege to take part in such a process.

Anyone who is contemplating donating should know that it’s simple. Nothing to worry about. Within a day or so, you’ll be back at work and soon will have forgotten all about it. But I can tell you from experience that on the other side, no one is forgetting anything. They’re ecstatic with joy as your stem cells seep into your patient’s bloodstream. And they never forget. Not days later, not weeks later, not even years later.

About a year after the transplant, when it was legal to do so, I received a letter from a lady in America. She introduced herself as the one who received my stem cells. She said she is in her fifties and has three kids. She had had leukemia and needed that transplant to stay alive. I couldn’t believe what I had accomplished! Just minimal discomfort on my side but for Nancy. I had given her back her life.

She invited me to come visit her in the US and I invited her to visit me in Israel. So far, neither has happened but we both hope someday… Meanwhile, we’re getting to know each other via email.   My message today is unequivocal: Give! Donate! There are so many still waiting in line. Subsidizing the cost of the genetic testing or getting tested yourself or both. It’s such an infinitesimal effort, compared to what you are granting them.Facebooktwitterpinterestlinkedinmail

Never Give Up Hope

seeds-of-life hope
Never give up hope

“My two sons are adults but they took it real hard. I think they were afraid they were going to lose their father.” A.S. recalls those horrific days when he learned that he would be battling cancer for the second time. “My wife is a librarian. She did what comes naturally to her and researched the disease. And panicked. There were so many possible outcomes and a lot of them …not good. But she was there at my side, terror and all. Continue reading Never Give Up HopeFacebooktwitterpinterestlinkedinmail

But I Feel Fine

RH 19 interviews Eric Safire 3
Post transplant, thanks to Ezer Mizion

Utter shock. That’s what I felt sitting there in the doctor’s office. It was a busy time for me. I’m a lawyer and I was in the middle of trying a complex murder case. But it was time for my annual physical and, feeling virtuous and responsible, I took time off to have it done even though I had zero symptoms. Then the doctor asked me to sit down. Something in his serious tone of voice told me I would not be getting back to my murder case too quickly. Continue reading But I Feel FineFacebooktwitterpinterestlinkedinmail

Real Lives…Real People…Real Families

RH19 interviews Ron Klein
G-d was certainly watching over me…

“It all started with a government contract in 2013 that required a complex background check, including detailed physical exam. I am the owner of commercial cleaning company”, says RK. “Of course, I wanted to dot every ‘i’ on this very lucrative deal. The physical was a bit of a problem since my doctor was not available. So I went to the sub who refused to fill out the form without an exam. I noticed the doctor becoming agitated as he listened to my heart. Well, there was good reason for his agitation.   It turned out that I had a heart condition that required open heart surgery. Pretty scary to think this never would have been discovered if I hadn’t received that contract.  Halfway through the post-surgery recovery period, I began feeling chest pains. My heart was checked and found to be fine but my blood was not. What’s going on, I thought to myself.  In April the blood work had been fine, now in July suddenly not? So there in the midst of recovering from open heart surgery, I was found to have AML. Isn’t there some rule about not hitting a guy when he’s down?   Later on, I was told that I probably had had leukemia for a while but it was held in check. The open heart surgery most likely caused it to develop and spread.

RH 19 interviews Ron Klein d
Without Ezer Mizion, this ultimate in joy never would have been

Only a stem cell transplant could save me. Thank G-d, Ezer Mizion found a match for me. The cells would be transported from Israel to my hospital in Chicago. Just one problem. There was a major snowstorm in Chicago at the time. If my cells didn’t get here within that small window of time, we’d have to start all over. You can imagine how much I prayed. Well, they made it and I’m fine now and hope to remain so for many years. After the transplant, my blood became AB positive, a type mosquitoes don’t like- a great side benefit. “

PG and his wife are two balls of energy, speaking in front of an audience of hundreds. It wasn’t long ago that there were no jokes, no smiles. P had visited his doctor regarding recurring sinus infections. They were easy to cure but the cancer that was discovered during the comprehensive physical was not. “I needed a bone marrow transplant to survive and things didn’t look good. Well, I have a new brother now. We met recently. It is Yoni’s blood that is now coursing through my veins. That makes him my blood brother, right? We’ve become very close even though he lives in Israel and I live in the US. We try to spend quality time with each other whenever possible. There’s nothing I wouldn’t do for him. After all, he gave me my life.”

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L’chaim! To Life

hourglass
A cancer patient cannot wait!

He was eight years old. Third grade is a time for small boys to learn multiplication tables in the classroom and how to pitch a ball in the schoolyard. But Naftali* had learned neither of these. Instead he learned about IV’s and scary hospital equipment, about hair falling out and about roommates who ‘disappeared’ never to return. Naftali had cancer. The medical staff called his parents in for a meeting. There was only one recourse left: a bone marrow transplant. It would save his life but a genetic match would have to be found soon or… it may be too late. Jews will genetically match other Jews and so Ezer Mizion was contacted. Ezer Mizion’s registry with close to a million potential donors is the largest Jewish registry in the world, but, for Naftali, it was not large enough. There was no match. Continue reading L’chaim! To LifeFacebooktwitterpinterestlinkedinmail